Dear Mr Rejali,
I’m not sure if you remember me but I was one of your patients at XXXX Hospital just over a year ago. During that period you diagnosed me with a combination of Chronic Subjective Dizziness and Mal de Debarquement (MdDS). My treatment consisted , after an initial assessment, of the use of one of your optokinetic videos in conjunction with visual reality goggles and mobile phone. You also advised me to have a course of Venlafaxine via my GP.
My reasons for sending you an email therefore are to give you , hopefully, some valuable and welcome feedback after following both of the mentioned treatments!.. It is with real pleasure to tell you that they have both succeeded in helping me enormously to getting back to some kind of normality. I no longer rock or sway and feel much stronger in both body and mind. Obviously time too may have played a part in my improvement but equally I am convinced that the treatments you prescribed have been significant in my overall improvement. I can’t say that physically I am exactly as I used to be but I am getting there. I feel that my comments will be of use to you when dealing with other patients in the future that might suffer in the same or similar way that I have and could offer hope to them. I understand that someone may have already been in contact with you from the MdDS online support group as a doctor who has treated a person with this condition. I was asked for your details last year and thought you wouldn’t mind giving some general advice on the matter. Hopefully, now I have been in touch with some feedback,this should give you a further insight when discussing MdDS with other patients. Utilising the means used in my case could even lead to another persons recovery when all else appears to have failed. The Optokinetic approach has now been adopted in Sheffield in a more sophisticated way and sadly has to be paid for privately. This technique has already been used in New York at Mount Sinai Hospital and has had a certain degree of success.
Naturally,having the daily treatment in only one place is not the most practical or economic route for most people,so perhaps the methods you prescribed seem to me a good way, albeit not exactly the same, in giving people like me a chance. It certainly worked in my case, although like a lot of things it takes time and can have a delayed action, so patience is key.
Well Mr Rejali, it is only left for me to say thankyou so much for helping me.You certainly seem to have a good rapport with patients and I felt confident in your hands.
I hope my comments are of use to you and thanks again, as it has changed my life for the better.